February 29 marks World RARE Disease Day.
1 in 10 Americans are affected by RARE disease and more than 350 million people are affected worldwide. 75% of RARE diseases affect children and 30% of children with a RARE disease will die before their 5th birthday.
The Global Genes Project is a grassroots effort to bring more awareness to the rare disease community as more awareness will lead to more support and funding which will aid in developing treatments and cures. Currently only 5% of rare diseases have any sort of treatment; there are no cures.
What you can do: